It Goes On

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In August, I had a series of MRI’s done to examine my head (to evaluate the state of my edema) and my spine (to check up on the tumor). I never received the results of all that imaging until this past week when, at a neuro-oncology appointment, I was able to view the images for myself.

What were the results?

The images of my spine were devoid of disease.

Just as significant, was the fact that all of the fluid (edema) that had been on my brain in May had resolved itself. The only flaw on the image was the small, circular scar from the Ommaya Reservoir (formerly known as my Unicorn Horn)—and, the scar, other than being visible on my head, is not going to hurt anything.

Overall, it was a positive appointment. I left feeling buoyant. Grateful. Life is slowly taking on some semblance of its former self.

This week’s appointment in Boston went just as well. My blood counts and immune system are developing nicely. I am inching ever closer to the important 100-day mark (when I can eat restaurant pizza again!). I was saddened to learn that the hair I’ve been growing on my currently bald head probably won’t stay, but over the last decade, I’ve been bald quite a few times. It’s something that you learn to live with.

You also learn to live with the fear of recurrence, of developing another malignancy, of forging a ‘happily ever after’ only to have it snatched away. While I think it’s important to acknowledge fear, I think it’s equally important to go on living in spite of it.

To eat the Halloween candy before the holiday.

To be awed by the sunrise.

To find solace in a phone conversation with a good friend.

As always, thank you for the continued prayers and good thoughts. The bone marrow transplant is over, but I still have a year of seclusion and check-ups ahead of me. Please keep the love and light coming. Thank you, thank you, thank you.

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2 thoughts on “It Goes On

  1. This is wonderful, amazing news. I’m so happy for you. I hope you’re finding plenty of good books and other pleasant diversions while you recover! Sending good thoughts!

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  2. Hello Laura…we have not met and I have not seen Seth since he was 13 but I am in regular contact with his mother Vicki and have been following your ‘process’ from afar. I am celebrating this most recent, positive report and sending best wishes to you (and Seth) from Australia.
    regards, Butch.

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