Nineteen Months Post-Transplant

morning fog

The field across the road is covered by mist. It’s the kind of blanket that envelopes the earth so completely, that you can’t see the grass. You can’t see if the neighborhood cats, Sneaky Pete and Tux, are on the prowl. You can’t see if the Wild Turkey Gang has returned (they’re probably distantly related to Boston’s Brookline Turkey Gang) .

The mist hides things—creating a blank canvass, not at all unlike the (almost) blank page that I’m currently looking at. I’m at a stand-still, questioning what I should fill this page with….

Maybe, since I requested prayers, I should tell you how my appointment in Boston went?

It went great!

The white blood cell line that I was worried about, was still elevated. I suspected that it would be. This particular cell line, known as your Eosinophils, usually indicate allergies when elevated in a normal person. In a transplant recipient, it can indicate the presence of Graft Versus Host Disease (GVHD).

I have allergies. I’m allergic to Alderaan (our cat) and I’m allergic to Spring.

However, because I was inexplicably losing weight, there was a possibility that I had GVHD in my GI tract. The only way to confirm this was with an Upper GI Scope—which, I obviously didn’t want.

So, what did I do? I ate ice cream before bed nearly every night.

I put some pounds back on. I’m still not at my fighting weight, but according to my lead transplant doctor, “You look great for being 19 months old”.

My reward for the difficult job of wiping out whole pints of cookie dough ice cream? A decrease in my anti-rejection medication! AND I get to discontinue my prescription Daily-Vite tab (Hello, gummy vitamins. I’ve missed you). I’m also no longer taking Folic Acid (which, ironically, had the highest co-pay). The amount of Magnesium-Oxide that I have to take has been reduced from 400mg three times a day, to once a day.

This is beautiful, wonderful, progress!

Did eating ice cream on a daily basis really instigate these positive changes? No. I believe it was all of the prayers, light and love that you, Dear Readers, surrounded me with. Your presence has had a positive impact on my life—on every life that you come in contact with. Please remember how powerful you truly are.

 

With Love & Gratitude,

Laura

 

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Easter Wishes

bunny on the sidewalk 2.0

These wishes for a “Happy Easter” are either a day late (if one celebrates Easter Sunday) or right on time for those that celebrate Easter Monday.

Either way, Dear Readers, I hope you were/are able to celebrate Easter in the way that best suits you—whether that was attending an early morning church service and singing hymns (i.e. “Christ the Lord is Risen Today”), or hiding plastic Easter eggs in your backyard for your kids to find. Maybe you and your family celebrate with a delicious Easter dinner.

Or, maybe, the holiday is a time of reflection—to note all of the little ways in which spring has influenced our surroundings—and to ponder renewal, regrowth, resurrection. Maybe it’s finding the first daffodil or crocus brave enough to push through the earth. Maybe it’s sitting on your porch, eating jelly beans, and listening to birdsong.

bunny on the sidewalk

Whatever you chose to do, I hope it filled your heart with joy and excitement for spring. I hope it motivated you to be a good steward today, Earth Day. I hope that that happiness stays with you throughout the week.

Thank you, Dear Readers, for your presence here. Please keep the prayers, love and light coming. I am having my port surgically removed this coming week. Please pray that the procedure goes smoothly, that I heal quickly, and that I don’t remember any of it!

 

Love & Gratitude,

Laura

What Cup are You Drinking From?

We all have our own eccentricities. We have habits that we can’t remember when, or why, they started. In fact, our quirks may be so embedded in our day-to-day lives that we can’t even recognize them anymore.

One of my quirks (which I am aware of only because it involves conscious decision-making) is to pick my coffee cup each morning, not by how much coffee it will hold, but by what it says. For instance, I pick this coffee cup when I need to feel stability, positive energy, and/or need to smile.

LLLmug

“Live. Laugh. Love.” It’s the recipe for happiness. And, who doesn’t want to have a happy day?

morning coffee

You may remember this coffee mug from a previous post. Yes, I drink from this cup when I’m writing—and particularly when characters have some bad karma coming their way. I invest a lot of time and energy into crafting my fictional characters; it hurts to injure and/or kill them. Sometimes, though, the plot requires suffering. As a writer, I do what I have to do.

Similar to some of my characters, and the unfortunate events that befall them, I, too, need healing. It is at this moment, that I reach for this handmade coffee cup:

htp mug 2.0

Made by Healing Touch Pottery, the stone embedded in this cup’s handle is believed to encourage healing. My body, mind, and soul need a lot of that.

And, let’s not forget the mugs that make me giggle:

potter mug

As some of you know, I became a Harry Potter fan later than the rest of my cohort. I was in my late twenties when I finally sat down to read the second book of the series. From there, I couldn’t stop reading. For a time, I read non-stop, until there was nothing left to read. Fortunately, it’s a series that is easy to revisit.

unicorn mug

You may not know this about me, but I have very little confidence. My self-esteem has flat-lined over the past few years. I don’t feel strong or brave, so, having a coffee mug that tells me, “I’m Fucking Magical”, gives me a much-needed boost. It makes me believe that I might accomplish good—or maybe even great things—during my day. It buoys my spirits, energizes me, and makes me feel special.

Of course, there are some mornings, wherein I just need love:

love you mug

This mug helps me on the mornings when I feel as though my tank is empty, as though there’s nothing left of me to give or share. I take a sip of coffee from this cup, and, somehow, I feel loved and capable of sharing love with others.

I believe, Dear Readers, that love—to be cared for deeply by someone or something (i.e. a pet)—is as essential as food and water. So, too, is being kind and caring toward others.

As always, thank you so much for your prayers, love, and light. You have carried me through so much and I am so, so grateful for your presence here.

 

Love & Gratitude,

Laura

Feathers and Flocks

Some of you may remember my posts in the spring/summer of 2018, regarding the Robin that would sit on our windowsill, looking in on us.

robin

I’m not certain if it was this Robin—or another Robin—that nested in our porch rafters, but the family has returned:

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I see them, almost daily, in our backyard. They haven’t reclaimed their nest yet, but I think that will come with time. After all, as the English proverb says, “Birds of a feather flock together”.

Although there is some question as to whether or not the European Starlings ever left for the winter months, they, too, are often in the backyard now. Starlings are a bit like shape-shifters, donning white spots in the winter, and jet-colored feathers in the summer. I do hope, though, that they don’t decide to nest in our chimney again; they’re truly a noisy bunch.

starlings_

We’ve also had surprise visitors, including several Mourning Doves. They are beautiful, graceful birds. I admire their song—even if it is sorrowful, even if it’s a tune that sounds like a question, “who, who, who”.

Finally, we have spotted a pair of Cardinals in the trees. They’re bright, cheerful. I understand that many people believe that Cardinals are sent by deceased loved ones as messengers. There’s something comforting about that belief. I’m not sure who’s sending these messengers to us, or why they are, but I think the message must be, “I love you”.

I learned, while preparing this post, that birds are extremely difficult to photograph! If you have any photography advice regarding birds, please feel free to share it in the comment section.

Thank you, Dear Readers, for continuing to encourage my writing habit. Please continue to send prayers, light and love. I’m still tapering my anti-rejection medication…and I can’t even begin to describe how happy I will be when I am finally taken off of it!

 

With Love & Gratitude,

Laura

 

Happy Birthday, Luna!

Luna birthday card

I will be honest; I didn’t want a puppy.

I wanted an older dog. I wanted an old soul that was house-trained, had good manners, and was slow-moving. Why? Because, in April of 2018, I was still slow-moving. The tumor in my spine (although radiated into oblivion) and the drop foot that I had developed while in the hospital, had left me unsteady on my feet. I couldn’t imagine taking an energetic pup for a walk.

In this, though, I firmly believe: we’re not always given what we think we want. We’re given what we need.

As is written in the Holy Bible: New International Version, in the book of Jeremiah 29:11: “For I know the plans I have for you,” declares the Lord, “plans to prosper you and not to harm you, plans to give you hope and a future.”

So, no, a puppy was not part of my plan. She was part of a bigger plan.

I needed a copper-colored puppy.

I needed someone to walk on a regular basis. I needed someone to challenge my pace. I needed a baby to feed and cuddle. I needed Luna.

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Was it all cuddles and neat obedience tricks? Absolutely not. She tested my patience like no one ever has. She chewed up countless shirts and yoga pants (while I was wearing them). She destroyed all of her plush toys—even the ones that claimed to be “indestructible”.

Despite these growing pains, she has become a reliable and comforting presence.

She’s my little guardian—letting me know when there’s a stranger in the yard (i.e. UPS) or strange creatures (i.e. wild turkeys)

She’s my therapy when I’m anxious. One touch of her super-soft fur, and the world feels right again.

She’s my Netflix binge-buddy—curling up beside me on the couch, watching superheroes save the world, documentaries on Vikings, or whatever else I might happen to be obsessed with.

I cannot believe how much—and how fast—she has grown up! Born as a member of a “surprise liter”, on an April 1st that was both Easter and April Fool’s Day, she is truly special. I often wonder, “where has my baby girl gone”? She’s still here, just taller and weighing in at 55-60 pounds. Her bark has changed, too. It’s louder, it’s part howl, and it frightens wild turkeys away.

She has a big, beautiful heart.

Luna by the back door

Happy 1st Birthday, Luna! Daddy and I love you to the moon and back.

Thank you, Dear Readers, for your continued prayers, love and light. Your encouragement sustains me.

 

With Love & Gratitude,

Laura

And, Still, They Sing

garage in March snow storm

The month of March always seems to surprise us with at least one, mega snow storm. This year might just be the exception to that trend. It was predicted that we would receive an accumulation of 18+ inches of snow on Friday, March 22. At our house, we saw approximately two to three inches.

The snow started falling here, at 7am, covering all traces of spring.

Two days before, the cedars had been alive with the music of returning, spring-time birds. As the rain changed to sleet and then snow, I became worried for them; they had flown home too soon!

birds

My fears were silenced, though, when I stepped outside with Luna, our puppy. The birds were still singing. The large snowflakes weren’t worrying them in the least bit. They continued to trill and whistle promises of warmer temperatures, growing flowers, and new beginnings.

Luna in her chair

This was, clearly, a life lesson.

I don’t sing very often anymore. I used to be a descant (high) soprano…but my vocal cords have changed. I can probably blame chemotherapy and total body radiation for that, but there’s no point in placing blame on past, unchangeable events. Instead, I need to be more like the birds. I need to sing—even if it’s snowing, even if I’m wildly off-key, and even if my voice cracks.

I’m not sure how Seth will feel about this confession, but the best part of our five-hour commute to Boston for transplant check-ups is turning on Pandora, and singing together. It’s so much fun! It does wonders for dispelling pre-appointment jitters. Of course, we have our favorite songs: Tenacious D’s “Tribute”; The Strumbellas’ “Spirits”; and the DREAMERS’, “Sweet Disaster”. These are just a few of the songs that we try to harmonize on. We’re also partial to Broadway musicals and anything featuring Neil Patrick Harris.

It’s a long trip though, and at night, when we’re tired of driving, we shift gears and listen to angrier-sounding music. Need to stay awake somehow, you know?

Shifting gears in this blog post, there is one soul in this house that is quite happy to see snow falling. No joke, our baby girl turns 1 on April 1st.

Luna by the back door

I’m sure Luna would love snow for her birthday, but she may have to settle for canine-friendly cake. Peanut-butter flavored, of course.

Thank you, Dear Readers, for visiting Of Pieridae & Perras today. Your encouragement means the world to me. Please continue to send prayers, love and light. Stay well, keep singing—spring is coming (eventually)!

 

With Love & Gratitude,

Laura

In Five Years….

If my fiancé is home, and awake, “The Office” is usually on. I’ve watched nearly every season of the television show with him. Occasionally, though, something strikes me as being new or important. Today, it was an episode in which the women of the office attended a meeting regarding gender in the workplace. Although the question was never actually asked (I re-watched the episode 3 times to be certain of this), the women started providing answers to the query, “where do you want to be in 5 years?”.

I’ve heard this question in the past—during job interviews and/or while preparing for job interviews. I’ve never considered applying it to my personal life. My knee-jerk response to the question was, “I want my novel published!” (I shouted that answer, in case you’re wondering.)

My fiancé smiled at this, but then suggested, “What about being alive?”

Although I am frequently haunted by my medical history, I have somehow taken my life—and the fact that I am still alive—for granted. I’m not certain how that happens. If I had to guess, I’d say that I get swept up by various anxieties, day-to-day chores…and forget that our next breath is not guaranteed.

But, yeah, still being alive in 5 years is a good (if not great) goal. Being alive and cancer-free is an even greater goal. Being alive, cancer-free and GVHD-free, is perhaps the greatest goal.

What will I do with this new-found health and appreciation? I’ll visit the ocean, walking out into the water until I am ankle deep in it. I will listen to the roar of the larger waves. I will watch the smaller waves lap the shoreline, forming lace-like patterns atop the sand.

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There’s healing to be found in nature.

I’d also like to wander through the halls of Boldt Castle in Alexandria Bay.

Boldt Castle

And, maybe, while I’m there, I’ll visit the ballroom and take a moment to  feel like a princess. I’d like to watch freighters navigate the St. Lawrence’s wide, wide waters. On the Fourth of July, I’ll like to admire the fireworks, lighting up both the night sky, and the river’s current with flashes of white, blue, and red.

So, Dear Readers, where would you like to be in 5 years?

Thank you, once again, for your prayers, love and light. Your kind words and thoughts have a positive impact. Please, don’t ever doubt that.

 

With Love & Gratitude,

Laura

A Belated Valentine’s Day Post

I probably should have written about Valentine’s Day as last week’s post…but, the idea didn’t visit me in time. So, here we are now, post-Valentine’s Day, and I would like to write about love.

Love is a subject that I think nearly every artist attempts to define and/or explore through their medium of choice. We paint our interpretations of it. We sing about it. We write about it.

valentine's bouquet 1.0

As children, romantic love is often presented in fairy-tale terms. You know—prince in shining armor, princess trapped in a tower, sort of thing. This particular image of romantic love is repeated in storybooks, TV shows, movies. Why is this important? Because we subconsciously carry this image into adulthood.

I am reminded of this whenever I hear Coldplay and The Chainsmokers’ song, “Something Just Like This”. Please note that I do not own any rights to the following lyrics:

 

I’m not looking for somebody

With some super human gifts

Some superhero

Some fairy-tale bliss

Just something I can turn to

 Somebody I can kiss

I want something just like this.

 

This song, easily found on YouTube, captures so much of how I feel about the subject of love, and how I think it should look. It helps that the song itself has a great beat and the vocals are smooth. It’s incredible.

Even if you haven’t heard this song before, you might be familiar with the adage, “You must love yourself, before you can love someone else”. This adage has always bothered me. I believe that it is absolutely, 100% possible to love someone else, even if you don’t love yourself. As someone that struggles with accepting herself, I had no problem falling in love with a tall, hard-working, ginger.

I think that this adage needs some modification. Perhaps it should be, “You must love yourself, before you can believe that someone else truly loves you.” Whenever I hear someone say, “I love you”, it catches me off-guard. I am not referring solely to romantic love. If a good friend or a relative says those three little words, my mind instantly fills with questions: How can you love me? I’m not perfect. Why would you love me? What can I possibly offer you?

Love is complicated.

valentine's bouquet

Admitting that the emotion is not an easy one to have, or to express, brings me to the ever-popular Biblical verse, 1 Corinthians 13:4-7. As it reads in the New International Version of the Holy Bible:

Love is patient, love is kind.

It does not envy, it does not boast, it is not proud.

It does not dishonor others, it is not self-seeking,

it is not easily angered, it keeps no record of wrongs.

Love does not delight in evil but rejoices with the truth.

It always protects, always trusts, always hopes, always perseveres.

 

It’s beautiful, right? That’s probably why I have heard it recited at nearly every wedding ceremony that I’ve attended. When you look closer, though, it’s a tall order—a challenge. Kindness is most likely the easiest part of it; but patience? You know how I feel about that word. “Not easily angered”? Oh, boy, I need to work on that one, too. When I was younger, my father would tease me, calling me, “the little rooster”. I do have a temper, Dear Readers, I’m just skilled at hiding it.

valentine's bouquet 2.1

What I appreciate most about 1 Corinthians 13:4-7, is the last verse: “It [love] always protects, always trusts, always hopes, always perseveres.” Yes, THAT is love. It’s not meant to be one day of the year. Love shouldn’t wax and wane like the moon; if it’s real, it should be ever-present. It should be durable; weathering life’s storms with hope. It should, and can, persevere.

Love is rescheduling an appointment in Boston because there’s foul weather along the usual route. Love is knowing that risking a car accident is simply not worth it. Don’t worry; I’m feeling well (knock loudly on wood, please) and will see my transplant team in March. During the time between today and that new appointment, I will continue tapering my anti-rejection medication. I’ll be 18-months old in March, which means I’ll be receiving six vaccines. Yeah, I know, ouch.

Thank you, Dear Readers, for your continued prayers, love and light. You have made this journey possible.

 

With Love & Gratitude,

Laura

Snow Stories

dried flowers in snow

Well, Dear Readers, I am feeling the need to do another free-write. Will any of the following make sense? I don’t know. I guess we’ll find out, together, at the end of this post.

There is a colony of rabbits (also known as, “The Colony” & “The Colonists”) that live in the cedar hedge surrounding our house. Some of The Colonists may also have a den underneath our porch. Everyday, when I go outside to retrieve the mail, I see their paw-prints in the snow. I see Mega-bunny’s tracks, and the junior-bunnies’ tracks. Their paw-prints weave between naked shrubs, and then disappear into the gaps in the porch’s lattice work.

And, then, I see cat tracks.

There are two neighborhood cats that occasionally visit us. I have decided to call them Sneaky Pete (he prowls the field across the road) and Tux (because he is a big, handsome, tuxedo-colored cat).

The paw-prints in the snow seem to indicate that they’ve both come calling recently.

Sneaky Pete’s paw-prints are much smaller than Tux’s, and he doesn’t seem to linger. He approaches the porch, turns around, and then follows the length of the driveway. He must cross the road there, to return home to his field and to the farmhouse beside it.

cat pawprints

Tux’s prints, however, seem to document a calculated stride. He’s hunting, which disappoints me, because I have a soft spot for The Colony.

Tux

The rabbits and the cats aren’t the only creatures telling stories in the snow. The squirrel—the crazy one that prefers to climb the garage’s façade sideways—left tracks along the roof. They melted away when the sun emerged.

Luna leaves paw-prints as well. Her tracks document joyful leaps into snow banks:

snow diving

Her hound nose also leads her to the porch’s lattice work and to the edge of the cedars.

I haven’t spotted any tracks or abandoned feathers, but the cedars are alive with the plaintive cries of blue jays. I have observed one, scarlet-feathered cardinal. A murder of crows sometimes flies overhead. Sporadically, a flock of mourning doves visit.

A spectator to all of these stories, is a cold, but wondrous, winter moon:

moon1.31

Well, what do you think? Do all of these little tales add up to something larger? Is winter a hunter, like Tux? Or, is it serene, like the moon? Can it be both?

As always, thank you, Dear Readers, for your on-going prayers, light and love. Your encouragement keeps me going. Thank you, thank you, thank you.

 

With Love & Gratitude,

Laura

 

A Fear to Laugh At

Those of you who have followed this blog since it’s inception, know that I often write about medical appointments and/or health developments. Some of those posts were difficult to write. Living through those events was, at times, quite frightening. Today, though, I’d like to share a light-hearted fear—something that can be laughed at.

Some pertinent background information:

  • I am not a gamer, but my fiancé is. It’s through his interest in gaming that I was introduced to Rust.
  • Rust is an online, multi-player video game. It is set in a post-apocalyptic world, in which survival is neither easy nor guaranteed. In Rust, players must scavenge for food, weapons, and clothing. Players make their own outfits from the various materials that they find (i.e. wooden barrels, metal buckets). Occasionally, players discover hazmat suits—which are helpful in high-radiation zones. It is the end of the world, after all.

So, what does any of this have to do with me? It has come to my attention that every time I carry a letter out to the mailbox—in the wee hours of the morning—I am dressed like a character from Rust. My outfit does not adhere to any fashion standards…it’s just a quick ensemble, pieced together to survive the cold.

I don’t bother getting properly dressed to put mail in the mailbox. Instead, I throw my thick, winter coat on, over my pajamas:

winter coat

My coat is respectable enough, but the pajama pants that I wear with it, vary from silky black material, to Christmas-themed, to gray with pink, dark gray, and white polka-dots.

I wear snow boots.

boots

This ensemble is topped off with a Star Wars hat:

star wars hat

Every time I open that front door, I pray for three things:

  • Dear God, please keep Alderaan (our cat) upstairs where he is safe. Dear God, you know my heart will shatter if he sneaks outside and becomes a road pancake.
  • Dear God, please do not let me fall.
  • Dear God, please don’t let anyone take a picture of me.

The road we live on is well-traveled, and I am afraid that one of these days, a commuter is going to snap a picture of me with their cellphone. I’m dressed so ridiculously in the morning, that I feel as though the picture would go viral—especially if it’s marketed creatively:

Woman believes she lives in Rust.

Woman dressed to scavenge, bust geodes, and build her base.

 Woman in Rust wears a surgical mask—it’s the end of the world!

Clearly, my marketing skills are a bit rusty. Pun intended.

I’m not actually afraid of having my picture taken; in fact, I find this “fear” to be rather amusing. It is so insignificant compared to other fears that have plagued me in the past! And, sometimes, it just feels good to laugh at the workings of my own imagination.

Thank you, Dear Readers, for visiting Of Perras & Pieridae today. I hope the description of my morning, Rust-like, attire makes you smile.

 

With Love and Gratitude,

Laura