Paper Poppies

Well, Dear Readers, it appears that I’m finally going to post an entry about a holiday on the actual holiday. This is rare. Maybe even ground-breaking (for my blog).

I have, over the years, found that most blog posts originate from questions. Today’s first question is a rather common one: what is the difference between Veterans Day and Memorial Day?

Veterans Day – a day to remember those men and women who have served in the armed services. We, in the U.S.A., observe Veterans Day on November 11th.

Memorial Day – a day to remember all those who have died in battle, while serving in the armed services.

I spent some time reading up on Memorial Day—mostly because it triggered pleasant memories from my childhood. Every Memorial Day weekend, while at church, an elderly couple (whom I was quite fond of) would distribute red, paper poppies to everyone in the congregation. We were supposed to wear these poppies, in remembrance of the fallen.

paper poppy 1.2

My next question (which I consulted the interwebs about) was: how do we honor our war-dead?

According to my findings, we can raise the American Flag (some sources say to raise it only to half-mast).

One source suggested attending a parade—preferably one in which current military personnel are involved.

My internet research also directed me to a poem written by John McCrae, a Canadian soldier and surgeon. Written in the early 1900’s, McCrae’s poem is entitled, In Flanders Fields. I’m not sure why I wasn’t introduced to this poem earlier in life…but I do recommend it. It is beautiful, heartbreaking, and so powerful that it is deafening. It is life and death. Loss and victory. It is, essentially, why Memorial Day exists.

I don’t have paper poppies to wear today.

I might not need them, though, as the research I did for this post has been both a lesson and a reminder that will stay with me. We can’t forget our fallen heroes. We can’t let this day pass without thinking about them and their sacrifices.

They deserve to be remembered.

 

With Love & Gratitude,

Laura

Advertisements

Nineteen Months Post-Transplant

morning fog

The field across the road is covered by mist. It’s the kind of blanket that envelopes the earth so completely, that you can’t see the grass. You can’t see if the neighborhood cats, Sneaky Pete and Tux, are on the prowl. You can’t see if the Wild Turkey Gang has returned (they’re probably distantly related to Boston’s Brookline Turkey Gang) .

The mist hides things—creating a blank canvass, not at all unlike the (almost) blank page that I’m currently looking at. I’m at a stand-still, questioning what I should fill this page with….

Maybe, since I requested prayers, I should tell you how my appointment in Boston went?

It went great!

The white blood cell line that I was worried about, was still elevated. I suspected that it would be. This particular cell line, known as your Eosinophils, usually indicate allergies when elevated in a normal person. In a transplant recipient, it can indicate the presence of Graft Versus Host Disease (GVHD).

I have allergies. I’m allergic to Alderaan (our cat) and I’m allergic to Spring.

However, because I was inexplicably losing weight, there was a possibility that I had GVHD in my GI tract. The only way to confirm this was with an Upper GI Scope—which, I obviously didn’t want.

So, what did I do? I ate ice cream before bed nearly every night.

I put some pounds back on. I’m still not at my fighting weight, but according to my lead transplant doctor, “You look great for being 19 months old”.

My reward for the difficult job of wiping out whole pints of cookie dough ice cream? A decrease in my anti-rejection medication! AND I get to discontinue my prescription Daily-Vite tab (Hello, gummy vitamins. I’ve missed you). I’m also no longer taking Folic Acid (which, ironically, had the highest co-pay). The amount of Magnesium-Oxide that I have to take has been reduced from 400mg three times a day, to once a day.

This is beautiful, wonderful, progress!

Did eating ice cream on a daily basis really instigate these positive changes? No. I believe it was all of the prayers, light and love that you, Dear Readers, surrounded me with. Your presence has had a positive impact on my life—on every life that you come in contact with. Please remember how powerful you truly are.

 

With Love & Gratitude,

Laura

 

Boots and Camera, Please

spring

As you know, Dear Readers, I had my power port removed last week.

I promised, on Facebook, to write a blog post about it. I wanted to use that post to encourage others to research Post-Traumatic Stress Disorder (PTSD). Unfortunately, the more time I put into writing that entry, the more triggered I became.

For me, PTSD has its roots in medical trauma. So, even a “small procedure” such as a port removal, is a big deal. It summons nightmarish memories from both of my cancer experiences and my transplant. While writing about it, I realized that I was walking the fine line between Mental Health Advocacy and Desiderata’s poetic advice, “Be gentle with yourself”.

I chose Desiderata.

I needed a break from the anxiety of it all—some solace—so I put on my boots, grabbed my Nikon, and went outside in search of spring. It wasn’t difficult to find.

We only have a few deciduous trees in our backyard. Currently, they are all heavy with buds and the promise of green leaves.

This slideshow requires JavaScript.

Our English Roseum (otherwise known as Rhododendron) is starting to wake up, too.

English Roseum

The shrubs, framing the front porch, are wearing the signs of new growth:

 

new growth

I am not sure if these are Day Lilies or Irises, but they’re certainly trying to reach for the sunlight.

iris or lily

And, then, of course, there are the birds:

robin in the horse shoe pit

Although this photograph—of a cardinal amid the tree buds—was pure luck, his presence was a comfort after such a long week.

cardinal amid the tree buds

Thank you, Dear Readers, for all of your prayers, light, and love. Please continue to send them; I have another follow-up appointment in Boston this week. It is imperative that my white blood cell lines are within normal limits this time.

 

With Love & Gratitude,

Laura

Easter Wishes

bunny on the sidewalk 2.0

These wishes for a “Happy Easter” are either a day late (if one celebrates Easter Sunday) or right on time for those that celebrate Easter Monday.

Either way, Dear Readers, I hope you were/are able to celebrate Easter in the way that best suits you—whether that was attending an early morning church service and singing hymns (i.e. “Christ the Lord is Risen Today”), or hiding plastic Easter eggs in your backyard for your kids to find. Maybe you and your family celebrate with a delicious Easter dinner.

Or, maybe, the holiday is a time of reflection—to note all of the little ways in which spring has influenced our surroundings—and to ponder renewal, regrowth, resurrection. Maybe it’s finding the first daffodil or crocus brave enough to push through the earth. Maybe it’s sitting on your porch, eating jelly beans, and listening to birdsong.

bunny on the sidewalk

Whatever you chose to do, I hope it filled your heart with joy and excitement for spring. I hope it motivated you to be a good steward today, Earth Day. I hope that that happiness stays with you throughout the week.

Thank you, Dear Readers, for your presence here. Please keep the prayers, love and light coming. I am having my port surgically removed this coming week. Please pray that the procedure goes smoothly, that I heal quickly, and that I don’t remember any of it!

 

Love & Gratitude,

Laura

And, Still, They Sing

garage in March snow storm

The month of March always seems to surprise us with at least one, mega snow storm. This year might just be the exception to that trend. It was predicted that we would receive an accumulation of 18+ inches of snow on Friday, March 22. At our house, we saw approximately two to three inches.

The snow started falling here, at 7am, covering all traces of spring.

Two days before, the cedars had been alive with the music of returning, spring-time birds. As the rain changed to sleet and then snow, I became worried for them; they had flown home too soon!

birds

My fears were silenced, though, when I stepped outside with Luna, our puppy. The birds were still singing. The large snowflakes weren’t worrying them in the least bit. They continued to trill and whistle promises of warmer temperatures, growing flowers, and new beginnings.

Luna in her chair

This was, clearly, a life lesson.

I don’t sing very often anymore. I used to be a descant (high) soprano…but my vocal cords have changed. I can probably blame chemotherapy and total body radiation for that, but there’s no point in placing blame on past, unchangeable events. Instead, I need to be more like the birds. I need to sing—even if it’s snowing, even if I’m wildly off-key, and even if my voice cracks.

I’m not sure how Seth will feel about this confession, but the best part of our five-hour commute to Boston for transplant check-ups is turning on Pandora, and singing together. It’s so much fun! It does wonders for dispelling pre-appointment jitters. Of course, we have our favorite songs: Tenacious D’s “Tribute”; The Strumbellas’ “Spirits”; and the DREAMERS’, “Sweet Disaster”. These are just a few of the songs that we try to harmonize on. We’re also partial to Broadway musicals and anything featuring Neil Patrick Harris.

It’s a long trip though, and at night, when we’re tired of driving, we shift gears and listen to angrier-sounding music. Need to stay awake somehow, you know?

Shifting gears in this blog post, there is one soul in this house that is quite happy to see snow falling. No joke, our baby girl turns 1 on April 1st.

Luna by the back door

I’m sure Luna would love snow for her birthday, but she may have to settle for canine-friendly cake. Peanut-butter flavored, of course.

Thank you, Dear Readers, for visiting Of Pieridae & Perras today. Your encouragement means the world to me. Please continue to send prayers, love and light. Stay well, keep singing—spring is coming (eventually)!

 

With Love & Gratitude,

Laura

This is Peace. This is Panic. This Might be Primaveral.

As you know, Dear Readers, my life has been a whirlwind of diagnoses, followed by medical procedures. I’m not particularly skilled at either resting or relaxation—but I can recognize them when I see them:

peace

This picture was taken last week. I was sitting on the love-seat, editing my latest manuscript. When I looked up from the text, both of the fur-babies were sleeping. Alderaan was on the mantle, and Luna was in her favorite spot, the recliner. The fire flickered quietly on the hearth. I took a picture, to capture the moment. This, I knew, was peace. Rest. Healing.

I am so grateful for these little moments.

And, yet, while writing these words, and studying that picture, I had a panic attack. There were no warning signs; I simply, and suddenly, had difficulty breathing. I felt like my heart was wedged between my clavicle and my first rib. I’ve had panic attacks in the past, but it’s been awhile; this one caught me by surprise. For a minute I thought, like most people do, that I was having a heart attack.

The panic attack eventually passed, and with it, the chest pain. I was exhausted afterwards, and left wondering what had triggered it. My brain, although tired, conjured Alanis Morissette’s song, “Ironic”. Because, yes, it was ironic to have a panic attack while thinking and writing about peace.

I couldn’t find a satisfactory answer as to what triggered the attack. Normally, I would sift through my anxious thoughts to find the source. Identifying our fears and confronting them are, in my experience, one of the only ways to beat them. Sometimes, though, that’s contraindicated—especially when rest is required. As the adage goes, “Let sleeping dogs lie”.

If the temperature is mild, Luna likes to take brief naps in the green lawn chair on our back porch. When she’s not resting, she’s using the chair to survey her territory. I realized, recently, that she might also be observing primaveral changes. There are some signs of an early spring: the angle of the sun and the moon have changed, and, now, it is not only the blue jays’ squawk greeting the sunrise. There’s another bird, hiding in the cedar hedge. Its song is more melodic, it speaks of warmer temperatures and flowers poking through the frozen earth.

It’s early yet (and it is snowing this morning), but spring is not far away.

This slideshow requires JavaScript.

These are obviously fake tulips—with price tags still on them—but I find the colors inspiring…so I thought I’d share them with you. I hope, if you need to smile, that they help.

Thank you, Dear Readers, for your continued prayers, love and light. Your presence here, at Of Perras & Pieridae, keeps me going. Thank you, thank you, thank you.

 

With Love & Gratitude,

Laura

A Belated Valentine’s Day Post

I probably should have written about Valentine’s Day as last week’s post…but, the idea didn’t visit me in time. So, here we are now, post-Valentine’s Day, and I would like to write about love.

Love is a subject that I think nearly every artist attempts to define and/or explore through their medium of choice. We paint our interpretations of it. We sing about it. We write about it.

valentine's bouquet 1.0

As children, romantic love is often presented in fairy-tale terms. You know—prince in shining armor, princess trapped in a tower, sort of thing. This particular image of romantic love is repeated in storybooks, TV shows, movies. Why is this important? Because we subconsciously carry this image into adulthood.

I am reminded of this whenever I hear Coldplay and The Chainsmokers’ song, “Something Just Like This”. Please note that I do not own any rights to the following lyrics:

 

I’m not looking for somebody

With some super human gifts

Some superhero

Some fairy-tale bliss

Just something I can turn to

 Somebody I can kiss

I want something just like this.

 

This song, easily found on YouTube, captures so much of how I feel about the subject of love, and how I think it should look. It helps that the song itself has a great beat and the vocals are smooth. It’s incredible.

Even if you haven’t heard this song before, you might be familiar with the adage, “You must love yourself, before you can love someone else”. This adage has always bothered me. I believe that it is absolutely, 100% possible to love someone else, even if you don’t love yourself. As someone that struggles with accepting herself, I had no problem falling in love with a tall, hard-working, ginger.

I think that this adage needs some modification. Perhaps it should be, “You must love yourself, before you can believe that someone else truly loves you.” Whenever I hear someone say, “I love you”, it catches me off-guard. I am not referring solely to romantic love. If a good friend or a relative says those three little words, my mind instantly fills with questions: How can you love me? I’m not perfect. Why would you love me? What can I possibly offer you?

Love is complicated.

valentine's bouquet

Admitting that the emotion is not an easy one to have, or to express, brings me to the ever-popular Biblical verse, 1 Corinthians 13:4-7. As it reads in the New International Version of the Holy Bible:

Love is patient, love is kind.

It does not envy, it does not boast, it is not proud.

It does not dishonor others, it is not self-seeking,

it is not easily angered, it keeps no record of wrongs.

Love does not delight in evil but rejoices with the truth.

It always protects, always trusts, always hopes, always perseveres.

 

It’s beautiful, right? That’s probably why I have heard it recited at nearly every wedding ceremony that I’ve attended. When you look closer, though, it’s a tall order—a challenge. Kindness is most likely the easiest part of it; but patience? You know how I feel about that word. “Not easily angered”? Oh, boy, I need to work on that one, too. When I was younger, my father would tease me, calling me, “the little rooster”. I do have a temper, Dear Readers, I’m just skilled at hiding it.

valentine's bouquet 2.1

What I appreciate most about 1 Corinthians 13:4-7, is the last verse: “It [love] always protects, always trusts, always hopes, always perseveres.” Yes, THAT is love. It’s not meant to be one day of the year. Love shouldn’t wax and wane like the moon; if it’s real, it should be ever-present. It should be durable; weathering life’s storms with hope. It should, and can, persevere.

Love is rescheduling an appointment in Boston because there’s foul weather along the usual route. Love is knowing that risking a car accident is simply not worth it. Don’t worry; I’m feeling well (knock loudly on wood, please) and will see my transplant team in March. During the time between today and that new appointment, I will continue tapering my anti-rejection medication. I’ll be 18-months old in March, which means I’ll be receiving six vaccines. Yeah, I know, ouch.

Thank you, Dear Readers, for your continued prayers, love and light. You have made this journey possible.

 

With Love & Gratitude,

Laura

Snow Stories

dried flowers in snow

Well, Dear Readers, I am feeling the need to do another free-write. Will any of the following make sense? I don’t know. I guess we’ll find out, together, at the end of this post.

There is a colony of rabbits (also known as, “The Colony” & “The Colonists”) that live in the cedar hedge surrounding our house. Some of The Colonists may also have a den underneath our porch. Everyday, when I go outside to retrieve the mail, I see their paw-prints in the snow. I see Mega-bunny’s tracks, and the junior-bunnies’ tracks. Their paw-prints weave between naked shrubs, and then disappear into the gaps in the porch’s lattice work.

And, then, I see cat tracks.

There are two neighborhood cats that occasionally visit us. I have decided to call them Sneaky Pete (he prowls the field across the road) and Tux (because he is a big, handsome, tuxedo-colored cat).

The paw-prints in the snow seem to indicate that they’ve both come calling recently.

Sneaky Pete’s paw-prints are much smaller than Tux’s, and he doesn’t seem to linger. He approaches the porch, turns around, and then follows the length of the driveway. He must cross the road there, to return home to his field and to the farmhouse beside it.

cat pawprints

Tux’s prints, however, seem to document a calculated stride. He’s hunting, which disappoints me, because I have a soft spot for The Colony.

Tux

The rabbits and the cats aren’t the only creatures telling stories in the snow. The squirrel—the crazy one that prefers to climb the garage’s façade sideways—left tracks along the roof. They melted away when the sun emerged.

Luna leaves paw-prints as well. Her tracks document joyful leaps into snow banks:

snow diving

Her hound nose also leads her to the porch’s lattice work and to the edge of the cedars.

I haven’t spotted any tracks or abandoned feathers, but the cedars are alive with the plaintive cries of blue jays. I have observed one, scarlet-feathered cardinal. A murder of crows sometimes flies overhead. Sporadically, a flock of mourning doves visit.

A spectator to all of these stories, is a cold, but wondrous, winter moon:

moon1.31

Well, what do you think? Do all of these little tales add up to something larger? Is winter a hunter, like Tux? Or, is it serene, like the moon? Can it be both?

As always, thank you, Dear Readers, for your on-going prayers, light and love. Your encouragement keeps me going. Thank you, thank you, thank you.

 

With Love & Gratitude,

Laura

 

(Non-alcoholic) Shots of Holiday Cheer

This post is intended for everyone—and anyone—struggling to get through the month of December. That includes me. Yes, I received excellent news at my last transplant check-up in Boston, but life consists of more than just doctor appointments. I, too, need to be reminded of the beauty and the love inherent in this season.

We’ll start with an undecorated Christmas tree:

There’s something about these images that remind me of an Elementary School Christmas Concert that I attended. I had older cousins performing in this particular concert. One of them was in the grade level that performed, “O Tannenbaum”.  I look at our tree, and I can’t help but sing the English version of that song.

As previously reported, our tree is a Fraser Fir and is approximately ten-feet tall. How do you decorate such a beast? First, I personally recommend obtaining a tall fiancé. Next, you will need to find a ladder. Put the two together, and you have someone that can hang ornaments on the higher branches.

seth decorating

Placing the tree-topper (which, in our case, is a white star) where it belongs, is a piece of cake for tall people on ladders.

a star a star

If you are shorter, like me, you get to decorate as high up as you can reach. Working as thus, you’ll eventually meet in the middle and voila! You’ll have a decorated Christmas tree for your fur babies to enjoy from a (safe) distance.

This slideshow requires JavaScript.

The tree isn’t the only decoration capable of inspiring holiday cheer. We adorned the fireplace mantel with a faux Amaryllis. It burns a happy shade of scarlet.

faux red flowers

We strung lights along our stair hand-rail:

Our house has a second floor, framed in with a wooden banister. In some ways, resembles a balcony, overlooking the first floor. We spruced the banister up with a garland, bows, and ornaments.

deck the halls

In fact, we randomly hung ornaments all around the house (this one is in the kitchen):

ornament 2018

The second floor is also where we set up a special, hand-made nativity set. Every time I walk by the crèche and the figurines, I hum either, “Away in a Manger” or “O Little Town of Bethlehem”.

away in a manger

It’s important to remember, though, that the season isn’t just about bright lights, glittery ornaments and greenery. It’s also about love:

blue jays

It may be difficult to see, but there are two birds in this picture. They are not turtle doves – just common blue jays – but they’re weathering the cold, winter temperatures together. Isn’t that what love is about? Supporting and encouraging each other – even on the coldest and darkest of days?

The season is also about hope for the future:

pine cone

This little guy fell off of our tree. It’s just a cone for now, but one day, maybe, it’ll be a 10-foot Fraser fir.

Thank you, Dear Readers, for your continued encouragement, light, and love. I am wishing each of you a happy and healthy holiday season.

With Love & Gratitude,

Laura

Hope, Even When it Hurts

My initial idea for this week’s blog post was to take a drive through the Adirondacks and snap a bunch of fall foliage pictures. I was going to share them with you today—as a photography essay of sorts—but my most recent check-up in Boston left me feeling exhausted. A road trip was simply out of the question.

What happened in Boston?

I may or may not have explained this forever ago—but when you have a bone marrow transplant, preparations for the procedure wipe out your immune system and all of the immunities you’ve accumulated throughout your life. This includes immunities from prior vaccinations and/or experiences with illnesses, such as the chicken pox. Although the chicken pox scars on my face say otherwise, according to my fledgling immune system, it’s like none of it ever happened. And, unfortunately, you do not inherit your donor’s immunities (I have no idea why those aren’t shared, but I’m sure there is a thorough medical explanation for it).

Although still 3-6 months away for me, before you can be released back into the “wild”, you must be re-vaccinated. Every shot you had as a child, you must have again. There is a schedule for this; for instance, at the 9-month mark you receive 4 shots. At the 12-month mark, you receive 7 vaccinations.

This past Wednesday in Boston, I received all of my 12-month shots, plus an inactive version of the flu shot. I’m not afraid of needles. I’ve grown accustomed to being poked and pricked. That doesn’t mean, however, that I’m numb to the pain of an injection (i.e. the kick of the Tetanus shot). It also doesn’t mean that the vaccinations can’t drain my energy and make me look, and feel, like an extra from a zombie movie set.

So, in an attempt to be something other than a zombie this past weekend, I drank copious amounts of orange juice and ginger ale. When the sun decided to shine, I bundled up and took a few pictures of how Autumn has touched our yard. We don’t have many deciduous trees around us, but there are a bunch of dried up, perennial flowers. Even withered, I think they’re beautiful. They hold the promise of rebirth in their faded petals and leaves. They’re a reminder to hope, even when it hurts.

This slideshow requires JavaScript.

As always, Dear Readers, thank you for sending prayers, love, and light. They are most appreciated.

 

With Love & Gratitude,

Laura