First, Dear Readers, I apologize for the tardiness of this post. I spent Monday at a follow-up appointment with my bone marrow transplant team in Boston.
As some of you already know, I’ve been experiencing shoulder and arm pain. I had originally thought that the pain was the result of relying on my arms to pull myself up the stairs in the new house (my legs are a bit wobbly still).
The source of the pain, however, is not as simple as overuse or a strained muscle.
I have graft vs. host disease (GVHD) again.
Just a little vocabulary review:
Graft – harvested and transplanted bone marrow from a donor
Host – me, my body.
Some of you may remember from an earlier post in 2018, that I’ve already experienced GVHD as an irritating skin rash. This time, GVHD is causing inflammation in my shoulder joints. Lab results also show elevated liver functions. So, yeah, it’s most likely in there, too.
The truth is, 70-75% of bone marrow transplant recipients experience GVHD on some level. Thankfully, it’s not all gloom and doom. GVHD means that my donor’s graft is capable of recognizing foreign substances. Right now, I—my organs, my joints—they’re foreign to her. She’s kicking my butt, too, which means if Acute Lymphoblastic Leukemia ever decides to pay me another unwanted visit, the graft will know exactly what to do with/to it.
Due to the fact that so many bone marrow transplant recipients develop GVHD, my doctors know precisely what to do to clear me of it. I will be taking a higher dose my anti-rejection medicine and adding a steroid to my daily regimen. Together, these two steps should tame the GVHD enough for me to gradually become comfortable again.
Please continue to send light and love, Dear Readers. I need them. Thank you, thank you, thank you.